FOXG1 Gratitude Tote for Maxwell

Maxwell was born with a profoundly debilitating condition called FOXG1 Syndrome. FOXG1 syndrome is a non-hereditary genetic condition that leaves Maxwell without the ability to walk, talk, sit, stand, grasp objects, feed/toilet himself, and caused a cortical vision impairment rendering him legally blind. He also requires a feeding pump to provide nourishment through his gtube. FOXG1 caused Maxwell to develop epilepsy in March 2019.

 

Despite all of these challenges Maxwell faces daily, he is the happiest, kindest, most patient kid ever! He never gets mad and loves music, swimming, mardi gras beads, swinging, bells and anything that lights up and has sound. He is a joy and blessing in our life and is loved by all!!! Recently, Maxwell has been advocating for disability rights within the state of WV. Maxwell has helped to create positive change at his school and within state government. We are really proud of him!

 

Maxwell is in need of an all-terrain stroller so he can participate in community activities that take place in areas away from paved sidewalks. The Jackson family is fundraising for an all terrain Kari Stroller to grant Maxwell more access to places his wheelchair cannot go.